The Pip.ilepsy Foundation was established in November 2017 in response to a little girl named Piper (AKA PIP) who suffers from an exceptionally rare and catastrophic form of epilepsy called PCDH19.
Since the launch of Pip.ilepsy the foundation has been successful in advocating for the Royal Children's Hospital Neurology Unit and the implementation of the necessary Out of Hours EEG monitoring service.
The foundation is currently in close discussion with the RCH regarding ways to better support families affected by epilepsy and have recently pledged to fund a 3 year AMBULATORY EEG program which will mean that patients can be monitored and/or diagnosed for epilepsy in the comfort of their own home freeing up crucial hospital beds everyday, this cost is expected to exceed $30,000 per annum.
The Pip.ilepsy Foundation continues to grow and strengthen both in the area of achievement and in the commitment to improve the lives of children suffering from epilepsy.
To achieve goals of this magnitude we need YOU to do what you can, give what you can and JOIN us in the fight!
On the 7th of April Pip.ilepsy will be partaking in the run for the kids with the goal to raise enough money to fund the ambulatory EEG program for 1 year.
We invite all of you to tie up your shoelaces and join us on the day.
To find out more about our foundation you can find us on facebook at https://www.facebook.com/thepip.ilepsyfoundation/ or istagram @thepip.ilepsyfoundation